Effective date: 31 July 2022
Registering for the Study through LifeSpace
To participate in the Study, we ask you to create an account through the LifeSpace App. You must affirmatively consent to participate in the Study prior to creating your account. We will inform you of the purposes for which we are collecting, processing, using, and sharing your personal data and we will obtain your consent through an informed consent document and process. To provide your informed consent, you will be asked to provide your first and last names, as well as your signature. To create an account after consenting to join the Study, you must provide a passcode and your Apple ID.
Information We Collect
In addition to the data we collect in registration for the Study, we collect the following data through the LifeSpace App:
Location Tracking. The LifeSpace App will track your location throughout the day. If you do not want your location tracked temporarily, you can toggle the “Track My Location” button to the off position.
Surveys. With your permission, we collect and process some self-reported data that is necessary for the purpose of the study. You will be reminded to take a 1-2 minute survey at the end of each day at 7pm. The survey will ask you how you rate your day, as well as determine if your life space map is accurate. If it is not accurate, you will be asked how it is inaccurate.
Standard Log Information. We automatically collect standard server log information, such as internet protocol address and details of how you used the LifeSpace App (e.g. history of page requests such as uploading data or signing in and date/time of request).
Other Information You Provide to Us. We also receive other information, including personal data that you may provide to us, such as comments or questions you provide to us.
How We Use Information
How We Disclose Information
When we work with third parties who provide services on our behalf, we take steps to limit the personal data provided to them to that which is reasonably necessary for them to perform their functions for the allowable purposes listed above. We require them by contract to agree to only process the personal data in accordance with our instructions and to maintain the security and confidentiality of such information by applying adequate technical and organizational measures.
To the extent permitted by applicable law, we may disclose your information if required to do so by law to comply with state and federal laws, in response to a court order, judicial or other government subpoena or warrant, or to otherwise cooperate with law enforcement or other governmental agencies.
As described above in the “How We Use Information” section, we will combine your Study data with those of other Study participants. The combined Study data will be available on a secure Google Cloud platform hosted by Stanford University. Researchers from the Study team and its partners accessing data through Google Cloud will analyze the data and report findings back through blog or scientific publications. This Study gives you the option to share your coded Study data more broadly, with other researchers worldwide, for use in this research and beyond to benefit future scientific research.
How is my Health app data handled?
iOS Health app data will not be requested through the LifeSpace app. We are not responsible for the data practices of the iOS Health app outside the LifeSpace App in any way.
Do Not Track
We do not track the LifeSpace App visitors over time and across third party websites or online services to provide targeted advertising, and we do not specifically respond to Do Not Track (“DNT”) signals.
LifeSpace Server uses appropriate physical, managerial, and technical safeguards that are designed to protect the confidentiality, integrity and security of personal data that we collect and maintain against accidental or unlawful loss, theft and misuse and unauthorized access, disclosure, alteration destruction, or any other type of unlawful processing. We cannot, however, fully guarantee the security of personal data or other information transmitted to us through the LifeSpace App or the Study.
We take steps to ensure that your personal data is kept in de-identified format by removing personal data that reasonably can be used to identify you directly, such as name or Apple ID, from the research study data. However, experts in re-identification may be able to reverse our processes and/or attempt to re-identify you if given sufficient cross-reference information. Total anonymity cannot be guaranteed.
Your Rights and Choices
Subject to applicable law, you may have certain rights regarding the personal data we maintain about you. You may have the right to request access to and receive information about the personal data we maintain about you, or have your personal data rectified, blocked or deleted if it is incorrect, inaccurate or outdated. Following your request, we will accommodate your enquiry as required by applicable law. Within the LifeSpace App, you are able to review the personal data we have collected through your use of the LifeSpace App and participation in the Study. If you wish to access, rectify, delete or block any other personal data we hold about you, you may contact the Study Coordinator at email@example.com. Please note that while any changes you make will be reflected in active user databases within a reasonable period of time, we may retain all information you submit for backups, archiving, prevention of fraud and abuse, analytics, satisfaction of legal obligations, or where we otherwise reasonably believe that we have a legitimate reason to do so, as permitted by applicable law. If you would like to withdraw from the Study, you may contact us at firstname.lastname@example.org to withdraw from the Study. Logging out from the study resets the app. You can withdraw any consent you have provided to us for the processing of your personal data at any time and free of charge. Please note that if you withdraw from the Study, we will stop collecting new data from you, but the coded study data that you have already provided will already have been distributed and will not be able to be destroyed or deleted. If you have questions about your rights and choices in relation to your personal data, or would like to request additional information, please contact email@example.com.
Cross-Border Transfer of Your Information
We will not transfer your personal data to countries outside of the United States. By using the LifeSpace App or participating in the Study, you will be asked to consent to the transfer of your personal data to other regions within the United States.
Dr. Michelle Odden
Department of Epidemiology and Population Health
1701 Page Mill Road Palo Alto, CA 94304
Phone: (650) 721-0230